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CF Trial Consortium

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Background

CF centres in the Netherlands cooperate in clinical studies by sharing facilities and volunteers. Since December 2019 this collaboration is formalised in the Dutch CF Trial Consortium (NCFTC).
All CF centres and the Dutch CF Foundation (NCFS) are members of the consortium. The consortium determines the policy, and the operational work is done by the Clinical Trial Facility (CTF). The CTF includes research coordinators of five CF centres, three principal investigators, NCFS and the consortium coordinator. All external communication for companies, sponsors and investigators goes via the consortium coordinator (cftrialconsortium@ncfs.nl).

Opportunities

  • Maximal opportunities for people with CF to attend clinical studies
  • Efficient use of dedicated CF staff, facilities and time
  • One point of contact for interested external parties to investigate the feasibility of a clinical CF study in the Netherlands

Contact

Dutch CF Trial Consortium coordinator Domenique Zomer, PhD cftrialconsortium@ncfs.nl

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