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Dutch CF Registry 2018

The NCFS maintains datafiles with pseudonimized information about people with Cystic Fibrosis. These files are meant to support scientific research and improve CF care and treatment.

The CF Registry 2018 contains data of 1487 Dutch people with (diseases related to) CF.


You can download the infographic here (PDF).  
You can download the complete report here (PDF).

In 2018, more than 100 people in the Registry were 50 years of age or older. Find out more know about the treatments and other characteristics of this group of people with CF and related diseases in the 50+ infographic below.


CF in Europe – facts and figures

The ‘At-A-Glance 2017’ report was published in July 2019 by the European Cystic Fibrosis Society Patient Registry (ECFSPR). This report shows important information about CF in Europe.

Here you can have a look at the complete report: 'Patient Registry Annual Data Report 2017'.