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Dutch CF Registry 2017

The NCFS maintains datafiles with pseudonimized information about people with Cystic Fibrosis. These files are meant to support scientific research and improve CF care and treatment.

The CF Registry 2017 contains data of 1578 Dutch people with (diseases related to) CF. The interactive infographic beneath shows several subjects.

You can download the infographic here (PDF).  
You can download the complete report here (PDF).


CF in Europe – facts and figures

The ‘At-A-Glance 2017’ report was published in July 2019 by the European Cystic Fibrosis Society Patient Registry (ECFSPR). This report shows important information about CF in Europe.

Here you can have a look at the complete report: 'Patient Registry Annual Data Report 2017'.